By CHIOMA OBINNA
Parents of children living with Sickle Cell Disorder, SCD, and carriers of SCD gene have been urged to adopt a positive attitude towards the condition so as to help them effectively cope.
The charge was given in Lagos last week at an awareness event organised by DABMA sickle cell Foundation in conjunction with Progeny Foundation, Genotype Foundation, Sickle Cell Advocacy and Management Initiative, SAMI and TonyMay Foundation to commemorate the 2012 World Sickle Cell day.
Chairman, Board of Trustees, DABMA Foundation, Pastor Emmanuel Ibekwe said SCD patients needed to be respected, loved and cherished. He advised parents to go the extra mile to love the and lighten their burden and try a not to treat their children who have SCD any differently from other children so as not to affect them psychologically.
“As parents, we should not let the day end without addressing any negative outbursts made during their crisis. Our communication with our SCD children must evolve some level of positivity especially during their adolescent years without complaint.”
Ms. Bukola Shogbuyi, President Progeny Sickle Cell Foundation and a sufferer advised other persons with SCD to pursue their dreams irrespective of the condition they have found themselves in.
Mr Fillius Osubor, Vice Chairman, DABMA foundation said that a sickle cell bill had been passed to the senate for assent to help the government look into the needs of people living with SCD.
“We hope that the bill which has been sent to the senate would get the assent of the whole house so that we can begin to see how we can manage SCD as a nation
“We also appeal to corporate organisations to provide funds in order to alleviate the plight of sufferers in the country.”