The United Nations General Assembly on 22 December 2008, resolved to recognise Sickle Cell Anaemia as a public health problem deserving of national and international support and declared 19th June as World Sickle Cell Day.

The Sickle Cell Foundation Nigeria is a non-governmental and non-profit making organisation dedicated to the proper care and control of sickle cell disorder in Nigeria.

The Foundation has developed, on Ishaga Road, opposite the Lagos University Teaching Hospital, a National sickle Cell Centre, the first comprehensive sickle cell centre in Africa.

Our major priority is to build the capacity to intervene meaningfully and significantly, by undertaking and promoting research; training essential manpower; liaising with national and international stakeholders; helping to develop appropriate policies; and coordinating and monitoring their integration into the national health care systems.

Our Programmes and Services

• Prof. Olu Akinyanju

1. Genetic Counselling – Expert genetic counselling is available at the National Sickle Cell Centre on Mondays to Fridays through the support of the Heineken Africa Foundation (HAF).

It is recommended to persons who have sickle cell disorder (SCD), their significant relatives and healthy carriers of the sickle cell gene (HbAS). SCD and its mode of inheritance, and complications will be well explained as well as where to obtain standard preventive and curative care.

2. Clinical Services – improving the standard of health care of persons with sickle cell disorder.

With support from the MTN Foundation, we supervise the running of 5 dedicated Sickle Cell Clinics with provision of free drugs and some furniture and basic equipment in 4 States, namely Delta, Edo, Kano and Lagos. More states will be added when funding permits. Already, these clinics have recorded improvement in the quality and duration of lives and we hope that the State governments will replicate these facilities in other towns in their States.

3. Prenatal Diagnosis – with this service couples who have the possibility of bearing children with sickle cell anaemia, are able to find out in early pregnancy (about 3 months), the haemoglobin genotype of their unborn child. This service has no sponsor yet and is sustained by fees paid by clients, making it unaffordable by most Nigerians.

4. Prevention of Strokes – Stroke occurs in about 7 percent of children with sickle cell anaemia. The stroke can be prevented if children who are likely to develop it can be identified before it occurs. The use of a Transcranial Doppler (TCD) Ultrasound equipment can identify children who have a high risk of developing a stroke. This service is now offered at the National Sickle Cell Centre courtesy of the HAF. Children identified with a high risk of developing stroke will be given appropriate preventive treatment.

Capacity Building – The Foundation organizes regular capacity building training programmes for different cadres of health care workers and other stakeholders. These courses include:

Training in Genetic Counselling in SCD (courtesy MTN Foundation).

Update Seminars on the Treatment of Sickle Cell Disorder.

Training Workshops on the Laboratory Diagnosis of SCD and related disorders.

Training of Sickle Cell Specialist Nurses.

5. The Stanbic IBTC Library at the National Sickle Cell Centre offers on line public Access (OPAC), Book collection, online resources and database, and Information alert (setting email database in order to send information for library users). The library is open to researchers, undergraduate and post-graduate students, health professionals, as well as members of the public seeking general information on sickle cell disorder. It is open on working weekdays from 9am – 4.00pm.

For Donations & Support

Your donation can make a difference. Donate to the Sickle Cell Foundation or to a credible sickle cell organisation in your state of residence.

Hire the Union Bank Hall or the Accenture Seminar Room in the National Sickle Cell Centre for your Company meetings and training seminars & workshops. There is ample vehicle parking, cafeteria and the Bellview Lodge with spacious well appointed rooms to let.

Fly Dana Air – the best way to fly and drop your cash in our in-flight donation envelopes.

CarDan Sickle Cell Centre must not be allowed to die! It is on Plot 118, Ikenegbu Extension, Ohaji Street, Owerri, Imo State. This Centre was founded in 2008 by Mrs Carol Nwosu and her husband. They have been running it with personal funds and can no longer afford to sustain it alone.

It is visited by patients from as far as Umuahia and its closure will be disastrous to the affected population. I am appealing on their behalf to all philanthropic Nigerians especially the Government and good people of Imo state to rally round and save CarDan Centre from closure. Please contact Mrs Carol Nwosu – carolnwosu@hotmail.com.

Appreciation

We appreciate all our individual and corporate sponsors. We also thank our Solicitors – Adepetun, Caxton-Martins, Agbor & Segun, our Auditors – Kwashie Konu & Co, our Event Planners – Zapphaire Events for constant professional assistance.

For further information, please contact:

Coordinator: +234 803 584 6666; +234 1 762 1522

Counsellor +234 808 326 9719

Email: info@sicklecellfoundation.com

scf-ng@hotmail.com

Website: www.sicklecellfoundation.com

Disclaimer

Comments expressed here do not reflect the opinions of vanguard newspapers or any employee thereof.